Quote:
Originally Posted by toadie
although, it is very expensive to see a movement disorder specialist.
simply put, it's a neurologist that specializes or has greater varied experiences wth parkinson's disease or such.
i saw a neuro that was movement disorder specialist, he was $500 an hour, ten years ago. my insurance paid $180 and i had to pay the rest.
after 10 years of pd, i was somewhat disappointed that he re-diagnosed me with pd, it was kinda bittersweet. i dunno, mayhap, i was hoping for something better or at least something else.
his experience made it easy for him to tell between the side effects of meds and what level of progression i was actually on.
he made recommendations for meds and such, kept in contact or consulted with my neuro.
all in all, the movement disorder specialist, made a big difference with my treatment.
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I once had a MDS that I had been referred to tell me that my PD symptoms were psychological. That was my experience with MDS. What made a HUGE difference in my life and the way I handled PD was for me to do what I felt was right. I limited my meds contrary to advice to take agonists, inhibitors, etc. I have now reduced my meds to less than 1/2 of what I was on. In addition I have very little "off" time. I'm not saying that I'm as great as I could be but I'm much more comfortable than I was.