Hi Liza Jane,
I took your advice awhile back, been on it about a month, somewhat better. Just started watching diet closer, cutting out all processed food, bad sugars, keeping carbs lowered. I am not diabetic but wonder what this diet will do. Tried everything else, I was gluten intolerant for years before finding out a year ago so the damage done during that time is probably the culprit but digestion is great now w/o gluten, so I'm doing the CoQ10, acetyl carnitine, evening primrose, R-lipoic acid and multiple vitamins. Also exercise an hour a day. Thanks for your input. I hope you didn't have to have the spinal surgery.
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Originally Posted by LizaJane
My neuropathy began in 1996. By 1999 I had two abnormal EMGs. I think had a bunch of other abnormals. I went to Mayo and had more abnormals.
Today I had an EMG as preparation for spinal surgery and the sensory nerves were normal. I haven't gotten the final report, but he neurologist who did the test said all nerves were normal, except my peroneal, which have never been normal. I do have a new L5 radiculopathy with denervation of the L5 muscles on the left, but it's not new enough to be causing my pain. (that's from the spine)
After seeing the results, one of the neuros said: That means the original diagnosis was wrong, and you never had neuropathy!
Yah, right. I told them I had learned how to care for it--the secret is feeding the mitochondria needed to grow axons (CoQ10, acetyl L carnitine) and taking antioxidants to keep inflammation from causing harm. In addition, keep using the muscles, whether you feel them or not. That was the secret I learned on this forum.
And really, my symptoms are so small compared to 10 years ago. Yes, they're not gone, but they are not that significant.
It can be done. If you've got an idiopathic small fiber neuropathy, or long fiber, and don't have an ongoing CIDP or Sjogren's picture, your peripheral nerves can heal.
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