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Old 04-07-2011, 11:32 AM
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
Stellatum Stellatum is offline
Senior Member
 
Join Date: Feb 2010
Posts: 1,215
15 yr Member
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Hi, Veronika. I'm so sorry for what you're going through. Most of us here were hard to diagnose, so we're all familiar with the terrible stage you're in--waiting for answers, not knowing what to think. I was so relieved to finally get my diagnosis: I was just emotionally more up to facing these changes if I knew what they were! We sure can undertand your depression, but I think you will be more able to take charge of things--mentally, I mean--if you get a diagnosis. I have been seeing a psychologist lately to help me figure out how to cope with the changes in my life.

One thing in your post I recognized is the episodes right before your period, that they were calling PMDD. My myasthenia symptoms always get much worse at that time (and others on this forum have said the same).

Many neuros are willing to give a patient a trial of Mestinon (Pryridostigmine) if the symptoms look like MG, even before the blood tests come back. Most of us here are on Mestinon. Some people get great results from it.

The blood test you had is to look for antibodies. Not all people with MG have the antibodies, so if your test is negative, your neurologist will probably want you to have another test--a single fiber EMG. But if the blood test is positive, that clinches the diagnosis.

This is a great support group, so please feel free to ask questions, or share experiences, or just vent.

Abby

Last edited by Stellatum; 04-07-2011 at 11:32 AM. Reason: forgot to sign my name...
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