The experience of patients that MDS in the US are few and far between, and that coverage is patchy extends much further. There are a few MDS in the UK but few have access to them, it is not the general experience.

Those in more affluent areas are better served. WE have NICE guidelines for the diagnosis and treatment of PD that any doctor can access, these do recommend referral to a specialist. The problem is that these are not always adhered to. bigger hospitals do have good specialists in PD.

Debi, I was surprised that in the US you have peer to peer recognition with what sounds like something that neuros opt in to, rather than specifically train in. Though you do qualify that by indicating that where they train is also a factor. Thank you for shining a light on the subject, especially for those of us outside the US looking in.

Sasha, I have had similar to you, only with a specialist, or consultant neuro.
Recognise the experience

Have to agree with Debi, that whether it is IPD or another pd like condition all patients deserve to see someone who can give them the best possible care.

If it is this patchy in developed countries what is it like elsewhere.....