REad my youngest daughters email this morn as I had asked her for photos from before my face/lids had gone into such droop. AS I have become less clear in emails she took that I said Dr R new neuro said I was normal tho I meant he said my face looked normal. Her still high level of denial is very hard for me and very hard on my oldest as it leaves 99% of the work for her to do. She said make sure you get enough protein and reminded that this neuro is a smart guy and that this is not my root issue meaning MG.

The other stuff is that the nicer appartment fell thru once the sec 8 number came thru yesterday. I am about 30 dollars short. There are some errors in the uncovered medical of about a$1000 dollars but my daughter is urging me to let it go as it may not make much of difference. I think it will as even $10-$20 dollars is big to me on a monthly basis. I did email my Sec 8 worker boss and said she wasnt making accomodations for my disabilty boy she did everything but buy my daughter a steak when she went in yesterday. She even showed her her the amount of rent/more exact range that is in the packet I am not supposed to get TILL this is all done. My daughter flipped!! She said all this time and all my hard work of calling and you couldnt give me this beofre? She said why? And well she is not supposed to and why would you want it. It like you are supposed to wait till 2 weeks before you have move to even look after you go this sheet. I knew this is what they did as I had this arguement 3 years ago.

Also suddenly they said I can have 2 bedrooms. I was catagorically told no 3 years ago when I knew a 2 bedroom bluiding that had radiant heat. Fuzzy math and fuzzy rules. Wow I am so glad my oldest is helping me. She is fried from all this and is going out of town for a couple days. I am so glad for that.

Oh I dont know if I said my neuro made a referral to the gastro doc for the diareah and all. I didnt how bad and all involved and there were some frustrating moments as he seemed to not have read Dr Suhs report that confirms MG but I got the referral and we discussed doing a tensilon test. He is an odd communicator. I had lost more weight. I am down 5 pounds.

Annie59