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Old 04-08-2011, 12:14 PM
antonina antonina is offline
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Join Date: Nov 2007
Location: manhattan, nyc
Posts: 272
15 yr Member
antonina antonina is offline
Member
 
Join Date: Nov 2007
Location: manhattan, nyc
Posts: 272
15 yr Member
Default Back home from Johns Hopkins

I am so happy I went! I learned more in a 1 hour visit with the neuro than I have learned in 12 years of looking for answers in NYC

I hope you will find the following info useful for your own PN issues. Here goes:

1) having more than 1 cause of PN has a synergistic impact, ie, having chemo/toxic PN, combined with diabetes and very high triglyceride levels amp up the sx and the nerve damage. Here's his explanation: hypothetically, if diabetes is a 2 and chemo damage is a 2 and triglyceride damage is a 2, it does not add up to a 6. It will add up to something off the charts because all 3 causes work synergistically.

2) newest studies show that aerobic exercise performed at least 5x per week will stop the progression of PN. The chemicals produced during exercise help to heal the nerves!!

3) he suggested I take a statin drug to reduce my triglyceride levels. He assured me a statin will not worsen my PN.

I do not know the results of the skin punch biopsy yet. I'll post them when I get 'em.

I wish there were a NY equivalent of a Johns Hopkins. I am especially grateful to Nide (Bob) since without his posts, I would not have known about JH's excellence. And of course, without this forum I would not have had access to valuable support & information.
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"Thanks for this!" says:
Dr. Smith (04-08-2011), malawigirl08 (04-10-2011), stagger (04-10-2011)