Melanie,,
Glad you found this place.
Don't think you've been ignored, it's just that we've all been where you are. So, we know what you're going through and empathize!

I wonder why you're not seeing a top notch Neurologist?
Try starting with the 'chief of neurology' at a university hospital, and ask if they treat rsd, and how familiar they are with it.
After all, if you don't ask, you're going to go through more appointments, (which are a pia), and might not get the help you need. I have No Faith in PM docs.
I've had rsd/tos for 27 yrs. and it took me 7 for a dx.

Here,
I suggest you ask more specific questions. It'll do yourself and us all a lot of good.

Be Well!

Pete
asb