Hi Kim...Welcome!!

I worry that you are courting a crisis when you are already on Mestinon, getting rest and naps, and still experience difficulty with swallowing and breathing. Sounds like between now your May neuro apt. you need to take hubby's advice and take it very easy.

I would be very interested in knowing what you and your neuro decide. I have had the prednisone/Cellcept conversation with my neuro (she initiated). Since I have had no serious issues with breathing or swallowing yet, I have decided against it until/if things deteriorate to a much greater degree. I really appreciated my neuro's offer since so many aren't willing to pursue aggressive treatment with their patients.

Keep in touch - - and I hope you have some really good days scattered in with the not-so-good ones.