Originally Posted by lindylanka

See my post on the other thread. You do sound as though you are both going through a very frustrating time with this. Before you go to the appointment write everything down, especially if you are not seeing the same programmer as before. Be firm and informative in the discussion of the problem. And let them know that there IS a problem regardless of whether it is the battery or not. Again come back here and post if there is no improvement, there will be someone out there who can advise on best next steps..

You did not say what your husbands condition was prior to DBS, or how much meds he was on. He is still taking quite a lot of sinemet, this is also something you could discuss with someone who has gone through DBS and also had similar problems. I am sure there will be someone in the DBS 'network' of patients, and I can think of a few people who may be able to discuss this with you, and offer some insight into how to approach the problem of improving matters.

Again best wishes, and good luck too for the forthcoming appointment.
Lindy