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Old 04-11-2011, 09:00 AM
busybusy busybusy is offline
Junior Member
 
Join Date: Nov 2010
Posts: 58
10 yr Member
busybusy busybusy is offline
Junior Member
 
Join Date: Nov 2010
Posts: 58
10 yr Member
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I am sorta like Stellatum. I have good days and bad days. I have swallowing problems on occasion. It is not everyday. The last bite of food will get "stuck" and stay there for several hours. I get choked more easily now especially when I am drinking water. My blood test came back positive twice, but I don't know anything other than they were positive. My dr. never discussed details about it. I had the single fiber EMG and it showed abnormalities so I got the diagnosis of MG. I don't have the double vision or ptosis. I do have one drooping eye but that runs in my family. It does not droop to the point of being closed but looks lazy. I have some blurred vision ever so often especially at night or trying to read and sometimes that is according to how tired I am. I just keep blinking until it clears up. I can feel your frustration, but my MG is on and off from day to day. Last week I would work and then come home and do some house cleaning and in a few days I was "whipped." The next few days I did not even feel like carrying on a coversation. I was so exhausted. My neuro does the muscle pushing but I have to do something for a while for me to give out. A few pushes here and a few there is not enough to show weakness for me. I had a severe case of hoarseness before diagnosis. Now when I take my medicine I can tell a big difference in the way I feel and I am now getting my own voice back. Still can't sing. Sounds terrible. I did have shortness of breath when I exerted myself before I started my medication. I would give out just carrying on a conversation. I have never had a MG crisis. One thing that was beginning to bother me is I started falling. I was playing kickball before diagnosis and feel twice for now reason. I could be standing still and hit the ground without any warning. I went walking one day and there I was on the ground again. That is the first reason I saw a doctor. Everything else just sort of fell in place. He was very smart and he is a good person as well as a doctor. It is according to how full my day is that usually tells what the next day will be. If I exert myself a lot staying busy, then the next day I usually am very tired. It will take rest over several days to get back to what I call "normal." Hope this little bit helps you and I hope things will work out for you. It took more than a year to get my diagnosis but I can look back and see that I was having these problems for several years and most would chaulk it up to depression. Take care. busy
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"Thanks for this!" says:
teelae (04-11-2011)