Hi Lou Lou, we are a bit of an experiment with medicine. They don't know it all. What you are doing in your research is fantastic. Your knowledge of your condition is only going to help you. If you can get to a new neuro, you will have as much information as you can. I found that having my records and knowledge in hand, created an atmosphere of cooperation between me and the doctors at columbia university med. center. don't give up on getting the help lou lou, I am in your corner, and alot of other people care about you too.ginnie