Yes, I was aware of the folks that had restenosis or poor outcomes. But honestly, at the rate that Meg was progressing, was frightening. From the time that her symptoms started she was never without them. Some of them got worse and let up a bit but most came and stayed. The paralysis was dramatic and quite upsetting to a young single woman.

We discussed stenting and reasonable outcomes. Mostly the goal was to stop the progression.

As I understand CCSVI, it's as if your brain is being partially smothered all day everyday. A low grade chronic hypoxia along with some inflammation from the iron deposited by turbulent blood reflux. It's really a terrible environment for the brain to endure.

Then I knew that the risks associated with venoplasty were realatively low. It's been done for 30+ years. The kinks are worked out.

And mostly I knew that the earlier that she got treated the better her outcome would probably be. To do nothing was to guarantee her more brain damage, potentially permanent brain damage.

So restenosis and worrying about restenosis took a backseat.

Megan says that she would get it done again in a heartbeat. That the procedure was a snap.
AND her insurance covered it all but a 30$ co-pay.

Also of note, she changed neuro's to one that was at least skeptically curious and a friendbof the Interventional Radiologist. The neuro thinks either she wasted her time and money OR she is a very luck girl.

I think she is one of the luckiest girls in the world.