Senior Member
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Join Date: Feb 2010
Posts: 1,215
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Senior Member
Join Date: Feb 2010
Posts: 1,215
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Right, sorry, I remember now. You and I are at the same stage of this thing. You got no results at all from the IVIG--how very disappointing! I got two wonderful weeks, but since it took me a week to get the transfusions and a week to recover from them, I don't think I'll agree to another course of IVIG unless I get dangerously sick.
I'm interested to hear that the doctor thinks you should try another course. I hope you get some really radical improvements from it this time.... Please do let us know. I am glad your doctor is considering plasmapheresis if the IVIG doesn't work again, because I have heard that it helps some people who aren't helped by IVIG.
As for the Imuran...well, it's early for both of us. I have lost some weight on it, but only because I was trying to lose a few pounds and the Imuran takes the edge off my appetite. I am sorry It's a problem for you. The low blood-pressure (especially under stress!) is concerning, too. You must be exhausted.
Here's hoping for happy endings to both of our myasthenia stories...
Abby
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