Quote:
Originally Posted by Debbie D
Welcome to NT...
I took Ampyra for a time. My neuro was one who did trials for it.
He suggested taking one dose in morning and one at about 2-3 pm even tho it's suggested to take it 12 hours apart. He told me why take it at night when you'll be asleep and not walking? He said one patient in the whole trial had a seizure from taking it this way...it was later reported that this patient had unreported epilepsy. He felt there was no danger in taking doses closer together.
Anyway , I tried it for two rounds...I got severe stomach pain & had to discontinue it despite my neuro's pleading to continue.
It did improve my gait, but wasn't worth the pain IMO.
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Thank you for that Debbie. It really helps to know your neuro has experience with giving it sooner than 12 hours. I think taking it a little earlier can help me with sleep some. I appreciate the info.

I'm also happy to read there was only one person but it can also be accounted for with the unreported epilepsy.