I apologize for not being around much....I am either on my feet or flat on my back...one or the other lately. Overloaded with adrenaline or recovering from it. I feel like the leading lady on Dance With Wolves. For those of you who know where I live, and what I am dealing with.... My new name is: 'Stands With Fist'.....anyway...(I have little to lose, so I can be mouthy, lol).

En Bloc....I have cardiac issues similar but not as severe as yours. My neuro told me (keep in mind he is not God), he told me that when the neuro system is not working, the heart won't work well either, if it is affected by the dysautonomia.

The cardio brought up doing an EPS on me. (I have at least 3 different arrhythmias)....and then an ablation as needed. Neuro said, the body will just develop NEW arrhythmia in what pathways are left. He said it is a difficult procedure for those with dysautonomia, but you already know this stuff since you have a pacemaker. As crazy as my arrhythmias are, I have noticed when I get off as many meds as I can, the arrhythmias become less common. I guess it depends if your dysautonomia is the cause of the arrhythmia or something else is.

You are in a difficult position. Keep in mind an ablation is a destruction of tissue, and will produce scar tissue. If you have a defib implanted, would that not handle any errant heartbeats?

In my experience, dysautonomia is hard to handle an organ at a time. Treating organs in isolation, is hard in dysautonomia.

That said, you have really good docs. I guess you need to weed thru the information and make a decision. You and I have some really unusual issues with severe dysautonomia. I am leaning toward as little intervention as possible, because my experience with intervention has been it makes me worse. Not every one has the same result as I do. Every med I take seems to kick back at me with some untoward side effect. I guess you have to figure out what works for your body.