Hi Patricia,

It sounds like it's time to fire your neuro and psychiatrist. It also sounds like you should try to pursue the disability through your GI. Once you go gluten free, I think the blood tests and endoscopy become much less reliable for diagnosis. What were your results of the IgA deficiency test? If you are not IgA deficient, then the Enterolab results should give you some answers. Also, you can have the genetic testing done to see if you have one of the celiac genes. I personally don't put too much faith in the gluten sensitive genes until Dr. Fine publishes his research on it.

I had the Enterolab test done myself for my own peace of mind. I think I may be IgA deficient, but also I had been off gluten for 7 months, so nothing showed up.

It sounds like you are getting positive results from a gluten free diet. I think that's really the only way you are going to know, is seeing how you feel giving up the gluten.

Claire