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Old 04-15-2011, 03:47 PM
SandyS SandyS is offline
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Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
SandyS SandyS is offline
Member
 
Join Date: Jan 2009
Location: Tampa, Fl.
Posts: 409
15 yr Member
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Just so happens that My Lindsay was diagnosed back in February, after a long bought of vomiting 7 months to be exact. It was so bad that she ended up with SMA Syndrome secondary to Gastroparesis. Needless to say she was sent away so many times and ignored by her doctors. We found a pain management in South Florida that was wonderful. Hospitalized her and had a team of doctors working on her. I have to say that we were finally listened to. It took three weeks of picc-line TPN feedings and an ND tube to have her gain sufficient weight to be released. Unfortunately, as I sit here typing she was hospitalized here in Tampa for severe stomach pain, vomiting and dehydration. As usual they hydrated her and sent her home.

We are heading back down to South Florida on Sunday morning for treatment.

We are also looking into a gastric pacemaker, I understand that there is a doctor at Shans in Gainesville, Florida that puts them in.

Anyway, we have been dealing with this MONSTER for about a year now.
Anything that I can help with let me know.

Sandy


Quote:
Originally Posted by keep smilin View Post
Anyone suffer from Dysphagia, Gastro paresis?? Common with RSD, food not moving into stomach from esophagus..or very slowly?? Help family...

Hugs KS
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