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Old 04-16-2011, 02:23 AM
Muireann Muireann is offline
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Join Date: Mar 2008
Location: Ireland
Posts: 263
15 yr Member
Muireann Muireann is offline
Member
 
Join Date: Mar 2008
Location: Ireland
Posts: 263
15 yr Member
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Nickvalo,

I think your attention to amino acids is a good strategy. I have never had my levels checked but since shortly after dx in 2003 I have been taking a supplement called Dopavite that is an amino acid formula specifically designed with PWPs in mind, although the manufacturers cannot state this claim on packaging. I was on the usual PD drugs, up to and including l-dopa, until I quit them 1.5 yrs ago. I now rely on Dopavite and a range of complementary therapies to maintain my health. I have the usual symptoms of PD but with a slow progression, a lot of pain, but a much better quality of life than when I was on PD meds, which were only hastening my decline.

At the time of dx I was also extremely B12 deficient and have an ongoing problem with this, which I deal with successfully by taking Solgar Methylcobalamin, 5,000 mcgs daily in sublingual form, available from iherb. Note I do not take Cyanocobalamin. The body would still have to convert it to methyl form and I would be loading my system with excess cyanide which is potentially toxic.

I think you are taking a very good approach to this problem. Do not underestimate the contribution of a B12 deficiency to neurological difficulties. Severe and prolonged deficiency can lead to subacute combined degeneration of the spinal cord leading to paralysis and dementia at worst, and to peripheral neuropathy at the very least. I also feel that in an indirect fashion it could be a contributor to PD. B12 deficiency makes you extremely anxious and you find it difficult to handle stressors; you feel like you are burning adrenaline all the time and this is very dangerous for anyone inclined to PD.

Best of luck to you.
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