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Originally Posted by EDELSTEP
My husband had this type of neuropathy dx at 65 has had symptoms for 3 years. Luckily he has no pain, numbness in feet. Recently developed balance problems because of weakness in R foot. We are trying to get the Rituxan infusions but insurance does not want to cover our doctors are trying to write letters of medical necessity to the insurance company. Still waiting.
How did you get your approval for your infusions?
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I have anti-mag monoclonel gammopathy. I have spent almost a year trying to get Rituximab. The hemotologist at the Mayo clinic suggested that I have my bone marrow checked for Waldenström's macroglobulinemia. It it a very low grade lymphoma that on its own is not of concern. I did have it checked and I did have it. This lymphoma produces demyelinating polyneuropathy with immunoglobulin M (IgM) monoclonal gammopathy. According to Mayo many people with anti-mag have this lymphoma.
The good news is that Rituximab is approved for Lymphomas or non-hodgkins lymphomas and therefore covered by Medicare and other insurance companies.
Also if you have an non-hodgkinins lymphoma the makers of Rituximab will assist with the product if not covered by insurance
Bob