Hello

I'm pcs 17 months now- I know that everyones time is different . I don't want you to feel discouraged from my length of time.

Just thinking back, around 7 months- where you are now- was such a mentally hard time for me. I had all those feelings you mentioned.

Still get all these things but they are not as severe.

The constant headache is very hard. But, it has improved so much from the initial months where just walking in my bedroom was too painful. I try not to think back how long I have had it. That is very overwhelming.

I understand being tired resting. It feels like a prison at times. But I still try to remember it is the best thing to do. Even when it is so depressing I try to think how lucky I am that I can lay down.

I listen to spa music if I can't calm my thoughts down. I still have to rest most of the day. The heating pad works wonders for pain and inducing sleep.

Around 7 mos I could walk for 20 minutes in the AM and then seep till the afternoon & go on another walk before going back to bed. It was very hard. I couldn't really go out at all. And I needed someone to walk with me. I would walk down the street holding onto all the neighbors bushes

Computer and TV is still hard but it got way better! Also the dizziness has improved so much! I only get dizzy now occasionally.

Like you, I would get dizzy immediately upon standing.

As far as meds go, I had tried so many different ones but for me the side effects were very problematic- I felt like I couldn't deal with any more .

I always went back to ibuprofen (Once I handle being off oxycodone). It barely helped the pain but it did help me w/out causing problems.

Hang in there I understand the struggle you are having.

P.S. Do you get physical therapy? That really helped me leaps and bounds.