This is going to sound like a crazy suggestion from me, since I am really not fond of benzodiazepines, but they do a great job of calming down the autonomic system. In your case, it would seem a possible option? Just a thought. I know your options are limited, which is why I am suggesting this. Other than that one suggestion, I guess you have to trust the doctors, and at least you are at Johns Hopkins. Don't rush your decision if you don't have to, think things over. Dysautonomia is always worse at both equinoxes, Fall and Spring. It tends to settle some in Summer and Winter...odd factoid, but true. Hang in!