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Old 04-19-2011, 01:12 PM
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Patti_Christmas Patti_Christmas is offline
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Join Date: Feb 2011
Location: Eaton Rapids, MI
Posts: 146
10 yr Member
Patti_Christmas Patti_Christmas is offline
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Patti_Christmas's Avatar
 
Join Date: Feb 2011
Location: Eaton Rapids, MI
Posts: 146
10 yr Member
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Wow - I read this and thought it was one of my previous posts. This sounds exactly like what happened to me. If you don't want it, don't get it. If you want your unit out because it is too painful, do so - but understand that it can make things worse, the same or better.

As far as the doc saying that you've already done the hard part, he's full of crap. If you have it re-done, and paddles implanted instead of leads, it is extremly PAINFUL! They have to do a laminotecomy to implant the paddles. Did they say the paddles would keep the sensations from going to other locations? Did they say that the paddle gives a direct connection and does not move like the wires?

Well if they did, ask they about swelling - ask them about the way the spine is floating in "water" and whether or not that affects how and where the sensations hit.

I started with RSD/CRPS in my right leg and foot. I had my first implant in Sept of 2010. The "corrective" surgery (why didn't they get in right in the first place if it's not so difficult?) in Dec of 2010. I now have RSD/CRPS in my chest, my back, my arms, hands and fingers. I've gone through so many freaking blocks, started "land" physical therapy (completed the first 6 weeks - woo hoo for me), and start "water" therapy tomorrow. Do I feel better? No - I feel worse.

My advise to you is to seek out a second opinion from a different pain management specialist - not just any "specialist", research for the best pain management specialists in your area, in neighboring states, etc.
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hurting (04-19-2011), Mark56 (04-19-2011), Rrae (04-19-2011)