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Senior Member
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Join Date: Sep 2006
Location: California
Posts: 1,239
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Senior Member
Join Date: Sep 2006
Location: California
Posts: 1,239
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Hi. The recommendation for neuro-psych is just to support a Dx of a "functional" condition, but meanwhile the clock is running on some other therapies.
I would do two things, (1) line up appointments with other specialists - such as the names that have been discussed at Rush - ASAP and (2) exercise your legal right to contact the medical records office at Northwestern and get a complete copy of your files. (No one is even likely to know that you did that: at a place of any size - at least in California - those requests are handed at a purely clerical level.) And if your new doctor believes that your neurologist is the bozo he appears to be, you should also make a written demand on the neurologist for an unredacted copy of your treating files, along with his notes and correspondence pertaining to you, as wee as all correspondence and reports from third parties.
Seriously, I can't stress the importance of seeing a CRPS specialist ASAP and would suggest starting perhaps with the junior of the two staff members at Rush (whose name escapes me right now). In other words, please don't be pulled back into the "referral economy" of letting your new primary care doctor sending you to his or her neurologist. Of course, if your doctor sees something unrelated, that should be pursued as well, but only on a parallel track.
You need to be evaluated by a treating CRPS specialist, trained to pick up such subtle sympathetic dysfunction as "pilo-erection" of body hairs.
Sorry if I seem to be in a rant, but I am seriously impatient over your lack of adequate care and treatment.
Mike
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