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Old 04-19-2011, 06:53 PM
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reverett123 reverett123 is offline
In Remembrance
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
reverett123 reverett123 is offline
In Remembrance
reverett123's Avatar
 
Join Date: Aug 2006
Posts: 3,772
15 yr Member
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[QUOTE=reverett123;757274]I had intended to wait another month before posting on this one, but the group could use a little positive push right now, so I'm going ahead.

A month ago, I had a problem. I was losing the use of my legs. It was most noticeable at night. If I tried to get out of bed the muscles went into tetany and would not function. I was pretty maxxed out on meds. 24 mg of requip plus about 1500 mg of sinemet total in both forms. As Laura mentioned, I have been dealing with some unusual problems for a year now and it was taking that much medication to make it through. Taking something every two hours. Having to hit the bed by 8:00 PM just to avoid crawling or, worse, a total lockup. /QUOTE]

Today I did pretty well with the following-
8 AM- 1x Sinemet 10/100 plus 1X Sinemet CR 50/200
10 AM- Repeat above
Noon- 1x Sin 10/100 plus 1/2 of a Sinemet CR 50/200 (or 100 net)
2 PM- Forgot to take anything
3 PM Took 1x Sinemet 10/100
4 PM- 1x Sinimet 10/100 plus 1x Sinemet CR 50/200 plus 1x Qu 400 mg
6 PM - Repeat 4 PM dose

That should do me for today. 1200 mg of sinmet. No requip although I will probably take 4 mg before bed to fend off RLS. Bed around 9 or 10.

Also, spent much of the afternoon working in the garden under sun in the 80s.

More intriguing, the last few days I have been feeling better. More hopeful Also, my GI tract is continuing to do better. And yesterday morning, for the first time in ages, I smelled coffee from the opposite side of the house!

Finally, never one to sit still, yesterday I decided to double the saw palmetto and silymarin that I had already been taking. Not good science, I fear, but my prostate is the boss of the former and my liver the boss of the latter. Scullcap is unchanged.
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Born in 1953, 1st symptoms and misdiagnosed as essential tremor in 1992. Dx with PD in 2000.
Currently (2011) taking 200/50 Sinemet CR 8 times a day + 10/100 Sinemet 3 times a day. Functional 90% of waking day but fragile. Failure at exercise but still trying. Constantly experimenting. Beta blocker and ACE inhibitor at present. Currently (01/2013) taking ldopa/carbadopa 200/50 CR six times a day + 10/100 form 3 times daily. Functional 90% of day. Update 04/2013: L/C 200/50 8x; Beta Blocker; ACE Inhib; Ginger; Turmeric; Creatine; Magnesium; Potassium. Doing well.
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