Junior Member
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Join Date: Jun 2010
Posts: 91
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Junior Member
Join Date: Jun 2010
Posts: 91
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Dear ddd15,
My heart goes out to you and your daughter. I was diagnosed with CRPS when I was 19 years old. I know what it feels like to be young and have this disease. Sometimes all I wish is that at least God could have given this to me after I got to live a full life. I know at any age it is horrible, but I want to get married, have kids and have a career! I'm still hoping it is in the cards for me (I'm 27 now). Please tell your daughter that there is hope, I went into remission after a year and a half and had a normal life up until 3 years ago when I injured myself again. So there is definitely hope!
I know there is much controversy with doctors regarding walkers and wheelchairs. I think if it allows your daughter the opportunity to get out more than it is worth it. We have to cherish those small moments of happiness any way we can. I don't know what your daughter has tried, but when I was 19 I did water therapy which seemed to help a little and I've had some temporary relief with Myofascial release, Cranial sacral therapy and Feldenkrais classes. These are more holistic/natural approaches, but since I've tried every med on the market I had to start thinking out of the box. Please let your daughter know we are rooting for her and that we support her!
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