Originally Posted by lorigood243

Dear Catra

I feel like i am in Virginia living out a similar situation to you. I went to see a new neurologist 2 weeks ago because after careful screening they said they could help me and give me a better medication than what i asked for. I have a unique swelling problem on my abdomen. Anyhoo...after using all my physical energy to get to their office....the whole thing was a waste of time...they didnt have anything to address my conditon and would not use the drug i asked for.

So then they said they would send me 2 hours away to one of the University hospitals in DC. I waited 2 weeks to be respectful and give them time to help me...i call them back today to find out they havent done anything. So they asked me if i wanted them to call...I said no i would handle it from here so i can interview the doctor and look him up online ect. I saw a new pain doctor. i had the appointment for a month. so i go when my meds are do...they tell me they dont write meds on the first visit which the recptionist never told me over the phone...and i had to give a urine sample...which i couldnt. so i was totally stressed out again...had to drive to my primary cares office to go get my refills. now i have to go back to the pain clinic sometime in the next 2 week to do the urine test before my appointment.

they just dont understand at all how taxing rsd is on our systems.
you are in my prayers catra...that everything comes together for your care to improve, and you to get the right help you need and deserve!
bless your heart!
Lori