I'm sorry to see this Forum is so inactive.
I'd like to hear more from people with PPMS -- what your progression is, how you cope day to day, whether or not some of youlive alone. Tips on meds and coping.
My H has PPMS dx in 2000 but with sx starting in 1994. He worked until 2008 and just went into a WC this year. Still has upper body strength, just can't walk.
I wonder how this will all end? With him in a nursing home? I'm more scared than he is as he refuses to think about the future.
Sigh.