Jannaw
I have many of the same symtoms. Sometimes my legs feel like they weigh a "ton" but once I get going then it gets much better. My balance is still not good. You mention that that your feet hate warm weather....mine too. This is something that I just figured out. I just had a 15 day vacation to a warm climate and each day I was fairly uncomfortable. Mostly with the help of med's I am fairly okay most day but I wasn't while I was there. I also want to mention that wine or any alchohol makes my feet flaming red too. I say a new doctor (pain specialist) who specializes in the total package last week and he diagnosed me with Erythromelalgia which is in addition to the Neropathy. He said sensitivity to heat and alcohol was what indicated to him this is what I have. Really really hard to come to terms with a glass of wine could possibly light my feet on fire! This may or may not be your specific issue but thought it was worth mentioning. I also just changed my medication around and my body does not like it. I switched one pill out for another and don't think the new one is working. Lessened my dose of Gabapentin from 8 pills to 6 and between the two changes am currently in quite a lot of pain. I call Gabapentin my "stupid" pills......like you I have no brain even though I am an intelligent woman by all other outward appearances. So my deduction is........I can be semi pain free and "stupid" or I can be consumed with pain. Neither choice is very good but I would rather be stupid than in pain. Very sad situation but it sounds like I am definitely not alone anymore. Thanks for listening and good luck with finding some answers. I finally feel like I am going to a good doctor who understands pain and is looking for the underlying cause. Not so with my neurologist, he just diagnosed and prescribed drugs and sent me on my way. I wrote way more than I planned hope it makes some sense. Good luck, i truly do feel your pain and frustration.