Thanks for your response Kicker.

H hasn't seem his neuro in a year -- again for the same reason -- nothing can be done.

He only takes low doese baclofen but won't talk much about his discomfort. IN fact he pretty well wants to deny what's happening most of the time.

I guess that's his way of handling things and I have to accept it.

Just wish this disease would plateau out,leaving him with the function he still has. Don't suppose that ever happens though.