Hi,
I talked to My Neurologist, first time since dx. He said he would be willing to let me try LDN. He says he has one patient on it and they are doing fine. He is checking on the dosages and said it has to be compounded? I also have Hashimoto's thyroiditis and take medication after I had the one side removed because of a solid nodule. He also put me on clonazepam, for my tremors and leg tightness. Also got another prescription for physical therapy, so I can try out the other one, to see if they have any ideas.
He talked about Lyrica, I told him it made me hyper and I fell easier on it. He made me walk, and he said he didn't want me walking any faster than my dizzy slow walk.
He also said to try the clonazepam first, then he would let me try ldn. After next Mri, which I think it will be November, if any new spots he would talk about inferons.
I really like him and I can tell he is listening to me. If I just could have saw him in 2007 when I first had lesions, and more new lesions, maybe we could have got some of this stopped.
Nothing I can do now, He says the dizziness is here to stay. Fun, Fun, it just bothers me when I am trying to do all my chores at home. So much for my relaxing retirement in a few years.