Quote:
Originally Posted by drswami
Mrs D,
this is very interesting. i have had HSV-2 since 1979, initially the burning pain i got was similar to what i used to experience before getting an outbreak of herpes. since developing PN i have had very few outbreaks of herpes. this could simply be because i am generally healthier. i asked the Neuros about HSV-2 being a part of the problem and they said no. i couldn't find much on the net about it either. do you have any more info?
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DRSWAMI
I too have HSV2 (also since 1979). I now have PN and Erythromelalgia. The ERY was just diagnosed by the head doctor of the pain clinic at UW. This particular doctor made special note that I have HSV2 among other things. He is currently doing extensive blood tests, etc. I don't have a follow up visit until mid-July so will report more on this topic later should he.
I too am experiencing similar nerve pain to the kind I used to get before each outbreak so naturally I believe that this long term HSV condition has contributed to my current diagnosis. My outbreaks of HSV used to happen with my cycle each month, I was almost not ever free from this crippling condition. Once Acyclovir was on the market I began taking different forms of it and I did get good relief. Went to just a few outbreaks a year, which was good.
Now I worry that long term use of Acyclovir could have poisoned my system leaving me with this horrible and incredibly painful condition. Of course I have no proof yet so if it is confirmed I will definitely report back as this could be affecting many.
I would love to hear from others who have lived with HSV2 and now have PN. This would be good supporting information I could take to my doctor on my next visit. I think the doctors can use all the help they can get, hope they feel the same way because I am all about gathering information.