Sadly we have to share our feelings to people with the same disease as its almost impossible to share these feelings of immobility, gloved hands, weakness, etc., with people that do not have MG and expect them to understand.
At times I feel as if I am a burden to my family, and while they are very loving and wonderful one feels at times like they just want to not hear about any more health issues.. Yet, this MG rules our lives so harshly its hard to make any plans like we once were able to.
Allen, I have no magic words of wisdom but I do suggest you count your blessings as there is always someone worse off and there has always been times of remission for me even if they are short ones. I only take Mestinon so far as I was only diagnosed a cpl months ago but have had symptoms for most of my life.
I, too, have been very very active and some days I can barely function so its been a hard thing to accept. However, I have watched many friends pass away and I am still here enjoying the beauty of life and I am not going to waste any day I can smile and feel the warm sun on my face.
My advice is to try to find peace and happiness each day at whatever level you are at - don't let MG take away your love of life ea day - find things you can do even when down for a spell. Might be as simple as come to this site or read a book - but we all can work up a good case of pitty party if we dwell on the things we can't do...
Hang in there!
Randy