Thread: EMG results
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Old 04-23-2011, 09:40 PM
teelae teelae is offline
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Join Date: Apr 2011
Posts: 18
10 yr Member
teelae teelae is offline
Junior Member
 
Join Date: Apr 2011
Posts: 18
10 yr Member
Default symptoms

Quote:
Originally Posted by alice md View Post
The practical question is- what are your symptoms, and what does he think explains them? And also what does he suggest to do with them treatment wise.
He says my symptoms should be more pronounced - even if in the beginning of MG and even if my MG is mild. So, because they are NOT more than what they are at present, and because my Ach test was negative the second time (he says the first positive was probably an error), and because the muscle tests were negative, he is content to say I do not have MG. He is also an MG specialist. I told him I am having esophagus troubles now, but because it is not following the mainstream, he says it is not MG. He says I should see and ENT. I told him, I have had the barium swallow, plus the endoscope and all was normal - yet the symptoms exist, especially about it feels like it is kind of "laying" on itself in spots when I lie on my side and liquids (cold) do not go down smoothly all the time now. I also had a few episodes around Christmastime when my food took about 12 hours to get down the esophagus. It seemed like it was stuck at the level of the sternum for hours, then SLOWLY, it started to resolve, it took about 12 hours to get that broccoli down. It just felt stuck. He says even in the beginning stages, I would be showing more symptoms than I am, and I do not have ptosis, yet my eyes will blurr going from one eye to the other for no reason, and then suddenly clear. I have had a couple episodes of vertical double vision (kind of like seeing half of the letter B on top of another letter B - so not two complete sets), that was back in September, and nothing since. Yesterday, I noticed my left eyelid drooping ever so slightly, but definately noticeable to me (I was tired) I took a picture of myself, so I have that, and it does show. In the beginning, back in October, I woke one morning, and I could not close my left eyelid just briefly, that started the eye appt, and then to the neurologist and then on and on to MG. This current neuro told me that MG is all about not being able to keep the eyelid OPEN - not being unable to close the eyelid briefly, which is another reason the MG is being dismissed. I have other symptoms of thigh and arm fatigue, but because it is intermittent and I am still able to function, it is not MG according to him. Also, I have noticed that I am almost totally not able to function in the heat. I simply can not hardly keep moving. I DO keep moving, but it just zaps me. I did not tell him this. Even in the bathtub, now my baths are warm and short. I don't know, maybe he is right. Help.
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