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Magnate
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Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
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Magnate
Join Date: Jul 2008
Location: Moncton, NB, Canada
Posts: 2,195
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Pain from the neck up.
Everything that should work from the neck up, sensory, doesn't work 'correctly'.
I have burning pain down 1 side of my face.
I have a tongue that feels like I've licked shards of glass.
Gums that feel like they've been scorched with hot coffee.
I smell diesel, plastic burning, smoke, chemical smells that aren't actually 'there'.
I have blurry to double vision (worse when stressed).
I often have a metallic taste in my mouth.
My cheeks feel like they have vein-y electrical pulses running through them.
Stabbing, sharp pains down my left side of my face when I have Trigeminal Neuralgia attacks.
I get a dull pain in my sinuses that feels like sinus infection - when there's no infection at all.
My head often feels like it's being squeezed by vice grips.
Tingling, crawling on my scalp, down the back of my head....
I could go on and on. Basically, nothing feels "by design" from my neck up. It's a new adventure every day.
__________________
2004 to present - Trigeminal Neuralgia
2007 to present - Burning Mouth Syndrome
March 2008 - Multiple Sclerosis DX
05/2008 - Relapse
05/2008 to 02/2009 - Copaxone
10/2011 - Relapse - Optic Neuritis developed
9/2012 - Relapse - Balance issues 1 sided
8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax)
April 7/14 - Raynaud's Syndrome DX
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