I am so sorry your daughter has to go through this starting so young. It is horrible at any age, but is robbing her youth I imagine. I am 40 and recently dx and am still trying to comprehend the changes it has and will bring to my life. I am not sure of any great places to go but I have heard that water therapy (in heated pool of course) is helpful in the sense that it is weightless exercise. Maybe it is something you could ask one of the Dr.'s or PT's or specialist's? Maybe that would help keep her limbs from atrophy.

Prayers and thoughts go out to you and your family~