my doctor contends that the protocol in use at his hospital is having better results than those of the Big 3.

like i said to someone else above, i am not here to argue the merits of protocols, as i am limited -- for reasons not really pertinent to the discussion -- to *this* protocol.

it's great that some have the resources to have treatment after treatment in the absence of positive results. still, even if i had unlimited resources, i doubt that i would continue down a path without benefit of some sort of proof that the path was beneficial to me.

it is not a lack of faith, hope, persistence, or any other positive attribute that some people seem to want to impune -- it's the rockbed of pragmatism that is driving my decisions!

well, that, and the excellent medical team that i have -- i am trying ketamine infusions against their advice. they are being supportive now that my decision is made and being acted upon -- but never wanted me to go this route.

i was told to wait, wait, wait -- until i had some resolution of the osteomyelitis we cannot seem to conquer, mostly. my crps has not really had much of a chance to improve these last 4-5 years, as i have had to have 11 major orthopedic surgeries due to avascular necrosis and then ensuing infections. at present, the organism plaguing my bones refuses to grow in the laboratory... and i have had over 42 weeks of i.v. antibiotic therapy. now i am on almost nonstop oral abx. and still, my last wbc was 16,000, my sed rate over 100 and my CRP was obscene. but i couldn't put off treating the pain in my arms and legs any longer.

i am very happy for your daughter and hope she continues to improve!
prof