Hi CindyCB.
Your case sounds very "unique" Many of the symptoms you talk about are TOS symptoms, but there could be a host of many other things causing them as well.
I too have had symptoms since I was young, progressing over time. It is not uncommon for people with tos to have leg problems as well, because of overcompensation of the body because of pain in other areas.
I think you have got alot of research to do, including reading here, and trying to find more specialists who will do more testing on you. As much as i respect the work chiros do, I would have a specialist read the xrays, and order further scans. Do consider seeing a tos specialist. If I remember I read somewhere here a specialist to see in the UK, is dr. Thompson.
Not sure what else to say...Im not a dr. but it does sound like you have more going on than just regular tos symptoms. But you are doing the right thing and taking your own intiative in researching for yourself, just continue on in pushing to see more specialists to find answers.
I hope that helps some, and I hope others have better answers, just wanted to chime in my thoughts.
Cheers,
Jay