Quote:
Originally Posted by SandyRI
180 mgs at one time is still a low dose. And one day at a time is still a short period of time.
Higher doses over a longer period time might work.
Sorry your opinion can't have more of an impact on the guys running the show. Why not call Dr. Schwartzman in Philly at Drexel? It will take a while to get in to see him. Google Robert J Schwartzman Chief of Neurology at Drexel University and you will find his phone number.
For more information on treatments for RSD, go to the RSDSA.org website. There is more you can try. Don't ever give up trying to feel better.. !! xoxox Sandy
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i got good advice from schwartzman a couple of years ago... and am following it!
sandy, i have had this disease/syndrome for nine years and have tried every treatment that isn't pure snake oil. i have even considered a couple of the snake oil options.
it's not called "giving up" at this point. it's called "living with" and hoping to "wear it well"! know what i mean? i need to opt for a life of balance -- attacking crps when there are the tools and the hope, managing it the rest of the time. unfortunately, transcending severe chronic pain and the loss of function in each of my limbs is not something i do well every day. add to that daily fevers and sweats, and i think i am doing a fine job.
jim broatch of rsdsa was the person who refered me to the doctor/hospital where i am getting my infusions...
i cannot say enough good things about that organization and hope everyone newly diagnosed finds their way there. it is a great place to get good information without having to deal with the cult of personality that surrounds alot of the info on the web about crps (hooshmand's "puzzles," etc).