Sarah -

Thank you for sharing your story. It was helpful to read as my boyfriend does not have the temp\color change or the hair\nail growth symptoms. As I was reading the info on the disease a week ago, I was wondering if he had CRPS or not. Based on your not having those symptoms either, it makes me think even more that he has this.

He has an appt on Thursday and I'm hopeful that we get on a path to correct. The good news is that this only started 3 months ago, so we have some time to resolve it before we hit the 6 mo\year mark.

I do have two questions. What is the best type of doctor to treat this - a neurologist? Any recommendations on the best hospitals or Dr names who specialize in this? I'm in the Philadelphia area, but could reach NY, Maryland, NJ etc.

Thanks again!!