First let me say, Im having a bad bad day. Im sick of calling Neurologist office to talk until im blue in the face to their assistants and receptionists trying to get help for this body im trapped!
The only relief i get i from the narcotics. I am not a big fan of having to take them...my life would be utter hell from sun up to sun down without them. I am very happy for everyone who can make it on all the other meds...for me they do absolutely nothing.
I have internal RSD so there isnt any physical therapy to help me, I cant do the ketamine infusions...and there are fewer and fewer pain clinics dispensing narcotics ..its been a struggle to get meds.
sorry i said i was having a bad day. There is nothing wrong with taking pain meds.
i hope you all find the best relief to give you some quality of life
Lori
Quote:
Originally Posted by AintSoBad
I've been noticing it seems more and more, that lots of folks are seeing Pain Control doctors, or centers.
This is kind of distressing to me. I think of them as pill mills. Am I wrong? (too much tv?)
Do these folks actually KNOW rsd? Do they know what tests you might need? Therapy?
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Remember the circle of RSD pain management?
Exercise (Use it or lose it) Keep your body limber.
(Yea, I'm great at that. I can walk, with a shock absorbing stick, but I cleaned under my desk the other day, bending, reaching, on my knees, and spent the next day in bed). Hah!
Psych. A psychologist, or better, a psychiatrist that specializes in pain management. You should go through a year or so of treatment to exorcise any psychological pain triggers, and then, go prn. Many of these docs, once they get to know you, may do this over the phone, but, I can't reiterate enough, how important it is.
Your Doctor, and your meds. A doctor who understands RSD thoroughly. And, will treat you correctly. You'll know when you've found the right one!
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I went to my own doctor and a chiropractor for years, then the chiro recognized (from another patient) the rsd. He got me in to see Dr S. in Philly within a couple of weeks. (that won't happen now)
My current doctor was Dr S's partner @ Jefferson, who started an RSD institute when Jefferson decided to build a HA center, rather than RSD.
He is, of course a Neurologist PhD. (psych). Dr Robert Knobler.
I'm very pleased. (He's in Fort Washington, close to Philly).
I sort of cringe when I see anyone write or say they're going to their PM doc. IF, they're just giving you a script for a medication, without delving deep into your personal symptoms, something is wrong. JMHO, of course.
What do Ya'll think?
Pete
asb
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