Dear indea88
I have nothing but admiration for you! 6 years, same as me. I just got diagnosed 9 months ago. i thought at least i have something to call this monkey on my back! my rsd is on my abdomen...i have 85lbs of swelling on my abdomen and no one knows how to stop it from growing~!
But whether its in your hand, or on your abdomen, its all relative to you, no ones rsd is in any better place than anyone elses...it just suks. But I am from Jersey originally. Born in Somerville, spent 5 years in lovely Manville,
then spent the rest of my life in Ventnor and Atlantic City. we are tough being from jersey. you know the saying..Dont worry..I got this, im from Jersey! what part of Jersey do you hail from?
Is there going to be a cure soon., probably not, but we got to have hope we have to hang in here. There are friends and family that need us and we dont want to make them miserable by taking ourselves out of the game early.
So hang in there dear...we shall overcome, I hope!
Lori
Quote:
Originally Posted by Indea88
I have had this for at least 6 years, TOS for 18. 5 years ago the Dr. Told me
I had stage 2, I was holding my own, and I blocked out the rsd part. Refused Ketamine, was afraid of the side effects.
In July of last year I started with a rash/itching on my left inner ring finger, the Gp tx me for lice! Ive been to two Derms, and the Gp. Not one treatment has helped, cotisone cream, salicylic acid cream, Nothing".....I have an upper trunk/neck injury.I have had the redness on my neck and chest,my inner arms, but this is on my hands, worse then ever now. It literally looks like psoriasis, the key I think is nothing helps, only getting worse.
I am miserable, my hands itch, swell and I'm hiding them in public, it looks contagious and people look and think "oh what is that" I have an appointment next week for my neurologist and I think I know its progressed. This is worse then the pain, Ive gotten used to the pain, now this.
Really depressed and sick of this monkey on my back
Add the fact that none one has heard of it, frustrates me even more
 |