Julia,
I typed a lengthy reply--my treatment history and everything but I got interrupted. Went back and finished and figured out how to send it and got the message I wasn't logged on. So I logged in and my message was no longer there. Tell me you received it... but I know you probably did not. My eyes are bothering me so I will have to stop for this evening anyway. I'm so sorry. I will do it again for you though. I THINK I accepted being your friend and I MIGHT have asked to be yours. At this point I don't really know what I've done!
We will work it out I promise. Hang in there. I'm looking forward to further conversations with a new friend. We can be a big help to each other.
Grace
Quote:
Originally Posted by ukiahcookie
Hello,
I see that you were diagnosed with MuSK type MG. I just got out of hospital (18 days) where I was diagnosed with same. I am on 50 mg/day prednisone and am waiting to see specialist.
Would you share your treatment history with me as there is not a lot of info for us MuSK folks.
Anyone else out there please weigh in
Hoping you are healthy,
Julia
I'm new to this site. Don't know what I'm doing or if this will work but here goes! I have been diagnosed less than 1 year with MuSk + Myasthenia Gravis. Never heard of it before I displayed symptoms in 2010. I live in Maine and am particularly interested in establishing contact with people from Maine who have the MuSk + diagnosis also. But would appreciate any contact from anybody not in Maine as well. As I'm not sure this will actually go successfully--I'll stop here for now! I am quite new to this kind of contact as I'm sure I will be proving to all. Not even sure how to send this...
Thanks!
Grace |
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