AnnieB
I hope things get better for you soon.
Those CFL lights bother me, too, but not like you have described (and no problem with sunlight for me), usually bloodshot/weak eyes and I can feel my energy level dropping...no fun.
I also have trouble being around electronic equipment, makes my MG symptoms bad. I go to the library a lot and discovered that I have to stay away from the computer section, there are about 30 or 40 computers available for use, all lined up close together. I've been wondering how electricity or magnetics effect a person physically. I wonder if they disrupt the proper functioning of our cells somehow, especially the nerves.
I've learned that spending time in an environment without any electronic devices helps my MG, not a lot, but a little. Maybe this would help you? It is the only thing I can think of.
Thinking of you.