Grand Magnate
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Join Date: Feb 2009
Posts: 3,306
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Grand Magnate
Join Date: Feb 2009
Posts: 3,306
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Tyson, Has anyone ever checked your CPK (creatine phosphokinase)? I'm asking because of all the pain you've had. Did they do a thorough differential diagnosis before treating you for MG?
Stem cell transplant is very tricky and undergoing chemo is no simple feat, especially since you're prone to infections. They have to weigh everything when making that decision. I know you want a remission but at what risk? I was always concerned at the number of drugs they threw your way. I realize you have a serious form of MG but more isn't always better. Look at all of the side effects you've had. And you are very young. You don't want to fry out your body and use up all the options so soon . . or do you?
I hope you can find a balance and treatment that works.
Annie
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