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Old 05-03-2011, 07:47 AM
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teresakoch teresakoch is offline
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Join Date: May 2010
Location: Fort Worth, Texas
Posts: 199
10 yr Member
teresakoch teresakoch is offline
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teresakoch's Avatar
 
Join Date: May 2010
Location: Fort Worth, Texas
Posts: 199
10 yr Member
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Congratulations on the new baby! I wouldn't worry too much about the MG being passed along to your kiddos - it's pretty rare, and even though it can be genetically linked, it doesn't necessarily mean they will get it down the line.

However, knowing that you have an auto-immune disease will be an invaluable piece of information for them to have going forward!

Have you ever been tested for Celiac Disease and/or tried a gluten-free diet? You might want to look into that possibility; many people with auto-immune conditions find that a GF diet helps ease some of their symptoms.

I, too, am seronegative - the way my neuro made the determination that I had MG was through a mestinon "trial". Almost nobody BUT people with MG can tolerate even the smallest dosage of Mestinon, so if a person can take it without bad side effects, some neuros will use that to make a "definite" diagnosis in a patient who has many other MG symptoms.

My MG also started in my eyes - I went to see an opthamologic specialist, thinking I was going to get plastic surgery to remove excess fat from my eyelids, and ended up in a neurologist's office instead....

I'm sorry this has happened to you at such a young age, but you probably had the same reaction as a lot of us did - "Oh, so THAT explains why I've been feeling/doing/not doing that..."

Thank you for your service to our country - we are fortunate, indeed, to have fine young men (and women) like you keeping us safe!
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