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Member
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Join Date: Jul 2010
Location: Illinois
Posts: 266
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Member
Join Date: Jul 2010
Location: Illinois
Posts: 266
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((((Gabriella))))
I'm so sorry to hear of your situation! I am very glad your doctor chose for you to stay out of the hospital per getting an infection, I feel that would be something my doctor wouldn't even think about.
The Acthar Gel did work some. Not as much as what the IVSM does, but it did help.
It either did not get me 100% out of a flare, I had residual damage, or my MS is just progressing out of control because I, again, am having issues.
After 6 hours of having taken the shot, my spasticity had calmed down immensely and I was able to walk without holding the walls and digging my toes into the floor. I was numb for two weeks after the shot but I noticed everyday I was a lil less numb than the day before. It seems it took a lil longer for it to kick in, but it did not have AS MANY negative side effects as the steroids. Still had to watch what I ate so I didn't swell up or get high blood sugar, goofy moods but not near as bad as the steroids (I end up hulking out while I'm on steroids and everyone in my life at that time hates me, along with myself, lol).
I do not have insurance, so I was sent an application for an assistance program for Acthar Gel, it's $25,000 per vial, they covered 100%. So definitely check into that.
I hope this helps some and you get to feeling better!
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