Member
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Join Date: Apr 2010
Posts: 132
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Member
Join Date: Apr 2010
Posts: 132
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Going down on pred has caused more problems for me than anything else. My body seems to really need it and it kicks up my MG and leads me going downhill faster than anything else when we drop it. I cannot get off pred even though I am on IVIG 5 days every 21 days.
I am seronegative too. My thymus was 6x10cm and they took it out in November but all my other tests were negative. My doc does NOT bother to retest me....he KNOWS it is MG and it cannot be anything else. You had a positive test! This sounds ridiculous and awful and I am sorry to hear it. I really think you need some answers here. I would ask first but consider a new doc. Why don't you just see Dr. Howard who did the first "EMG"? I am assuming you meant "SFEMG." That is very conclusive and specific for MG when it is positive. Sounds like trying that doc might be a good idea....
debra
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