I hear you Ayna and just hate that this rotten disease is making you so miserable.

Just to know that you are not alone and that we all go through this at one time or another and in one way or another. We know what you are feeling and validate your anxiousness and grief.
We accuse ourselves of deniel sometimes and yet, it's the Doctors who are in deniel. They can't solve our problems, so it must be all in our heads..
Hang in there, dear and live your life to the fullest that you are able.