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Old 05-04-2011, 10:37 PM
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Join Date: Aug 2006
Location: East Coast USA
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15 yr Member
Lady Lady is offline
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Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
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Hi Ayna,
I am telling you how I feel about this.
First, that is way too many flares when you are on a DMD. I was having 4 relapses a year, one overlapping the other after a flu shot in 1999.

I relapsed like this from 2000 until 2004. I was on Avonex for a year 2001 to 2002 still relapsing from heck, with flu symptoms for 3 or 4 days and it hurt my liver.

So I was switched to Copaxone for about 3 years or so. I got down to three a year, once I had twice a one year, but long ones 8 weeks. Then I had gotten allergic to "C" after a while.

I had to have high oral steroids for every exacerbation and then the worse ones got 5 or sometimes 10 days of steroids of IVSM infusion at 1000 mg. The steroids always did the trick. And this was while on DMD's.

I was told to give up the Copaxone by a well known specialist because it was letting germs overrun my body, by it's faulty surveillance system. It seemed to have helped for a while.

I don't think any of the DMD's work well enough if at all, but people are afraid to stop them, feel threatened by their doctor or feel forced to take something. Just my opinion.

I put up with hardly being able to work too, with flu and relapses all at the same time. It was overwhelming. I had MS since dx in 1981. I was better without all their medication crapola.

They put people on them right away. Why? Maybe they would be better without them? Give their body a chance to heal itself or as I did treat with lower oral steroids, when needed, like in the dark ages.

If inflammatory, steroids fixes that. The DMD's don't help inflammation, or reduce lesion size, and DMD's don't work for everyone, so what do they do? hmm
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"Thanks for this!" says:
AynaDee (05-05-2011), SallyC (05-05-2011)