Thread: Crps
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Old 05-05-2011, 10:01 AM
empowered empowered is offline
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Join Date: May 2011
Posts: 1
10 yr Member
empowered empowered is offline
New Member
 
Join Date: May 2011
Posts: 1
10 yr Member
Default CRPS ( old name RSD) also called nerve dystrophy

Sorry to hear about your pain, and I am sure you are worried after reading about this life - changing diagnosis.

I have been navigating the different treatment modalities for 9 years, since being diagnosed with RSD , which I was later told has been hanged to CRPS, (yet another Dr. referred to it as nerve dystrophy). I did have multiple blocks,
I also tried Neurontin, Lyrica and Cymbalta at different times. I understand that these drugs have been a godsend and a blessing for many folks, so I would urge you to at least see how they work for you. For me, they were not so good- I also experienced the blurry vision, weight gain (esp. Lyrica), but the worst side effect ( again- for ME) was the effect these meds had on my mood and outlook on life. I am generally an upbeat, "glass is half full "kind of person. While on these meds, (Cymbalta being the one that impacted me in the worst way) I became despondent, hopeless and really did not only consider ending my life, but just about was convinced it was the right thing to do. It took extreme force of will to pull back from that brink, fight with the worker's comp carrier who expected "compliance with treatment recommendations" to say "NO" ! " this is not right for me". So, at this point, I fell as though I have my life back - no more blocks, only a pain patch that holds the beast back enough for me to function. I use a Fentanyl patch since the oral opioids made me ill.
Please be willing to try any and all recommendations, and trust your body to tell you what works for you.
I will keep you in prayer, and wish you well. Always remember that your pain doesn't define you , or own you.
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